Jonah Pournazarian, 7 and Dylan Siegel, 6 are best friends.
Early last year, Dylan became aware that Jonah has a rare liver disease that has no cure. In order to help his friend, the boy decided to do a very unconventional fundraising effort.
“We said, ‘Let’s do a lemonade stand, the typical thing,’” David Siegel, Dylan’s dad recalled. “He looked at us and said, ‘I want to write a book.’”
And so, after a few hours, Dylan presented his parents with a handwritten and illustrated book, called “Chocolate Bar.” Needless to say, after two months on the market, Dylan has already raised $30,000 with a lofty goal of $1 million towards research.
“We never dreamed that this was going to happen,” Siegel added. “It’s just struck a nerve and now we don’t want to stop until we’ve hit our mission.”
Along the way, companies and strangers have donated towards the cause. Most recently, Whole Foods donated hundreds of chocolate bars, and a local Barnes and Nobles hosted a book signing.
Jonah’s genetic condition affects one out of a million children. He was diagnosed with the rare disease as an infant and has since suffered from consistent night sweats, blood sugar problems, and is often fed through a tube.
The funds from “Chocolate Bar” will go towards research for the glycogen storage disease at the University of Florida School of Medicine.
And for those who are wondering about the title, “Chocolate Bar” is Dylan’s term for “cool.”